Ohio Myeloma Initiative
Ohio Myeloma Initiative

Your involvement is key to our progress towards the cure.

The Initiative

What we need from you:

Sign up and join our initiative. After giving us some basic information about you and your doctors, we will take care of the rest. We will contact your doctors and ask them to send us your medical records. We will enter your myeloma history into our registry and then you will be a true member of The Initiative.

What do patients get out of it:

Our website provides information about support groups, general myeloma diagnostic and treatment information, and clinical trials available in your area. Information specific to you is also available by phone or email. This is not a tool to second guess a patient's oncologist, but rather a place where a patient can get information about his/her disease, lab tests, and symptoms with options specific just for him/her. Stay tuned, because by early 2014 we hope to give you not only access to your complete diagnostic and treatment history, but also the ability to take snapshots of information about myeloma throughout the state.

What do researchers get out of it:

Through this IRB-approved database, we will provide access to a clinical database to allow hypothesis-generating questions to be asked and answered with an incredibly large database with unprecedented detail utilizing novel techniques to parse large quantities of data present in the general medical record into discrete searchable fields.

What do clinicians get out of it:

Private practice oncologists have fewer resources than they did ten years ago, more regulatory requirements, and a more expensive operation. We hope to ease the burden of private practitioners by providing information and background that doesn't fit in a crowded clinic schedule.

Ohio Support Groups

JamesCare for Life provides a comprehensive range of resources and services to support cancer patients, their families and caregivers.

At The James, our caring, trained professionals help patients recover and adjust to new ways of living. Dealing with a cancer diagnosis and the special circumstances surrounding cancer can be scary for patients, and living with cancer involves more than the physical aspects of dealing with the disease. At The James, we help patients journey out of fear and into hope.

Numerous support groups, services and classes are offered by the JamesCare for Life Program. Here are some resources for patients diagnosed with multiple myeloma and their family and friends:

Cincinnati

Cincinnati Area Multiple Myeloma Support Group

Hugh and Marie Schaffer
Phone (home): 513-289-6842
E-mail: hugh69marie@gmail.com

Mary Anne Brennan
Phone (home): 513-871-3973
E-mail: maryanne_brennan@hotmail.com

Meets on the 3rd Thursday of every month
6:30 – 8:00 p.m.
The Cancer Support Community Center (formerly The Wellness Community)
4918 Cooper Road
Blue Ash, OH 45242
Phone: 513-791-4060

www.cincy.myeloma.org

Cleveland

Cleveland Clinic Myeloma Support Group Meetings

Debbie Hastings
E-mail: hastind@ccf.org

Meets quarterly, 1st Wednesday of the month
1:30-3:00 pm
Taussig Cancer Institute
East 90th Ave and Euclid Ave

Columbus

Leukemia and Lymphoma Society, Central Ohio Chapter

Melissa Shawver
Patient Services Manager
Phone: 614-498-0431
Email: Melissa.shawver@lls.org

www.leukemia-lymphoma.org

International Myeloma Foundation Support Group

Nick Menedis
Phone (Home): 614-868-8506
Phone (Cell): 614-216-4852
E-mail: nicksandy48@gmail.com

Meets the 3rd Tuesday of the month
6:30 - 8:30 p.m.
The Cancer Support Community Central Ohio
1200 Old Henderson Road
Columbus, OH, 43220

www.cancersupportohio.org

Amyloidosis Support Group

Muriel Finkel, President
Sue Smith, Ohio/Michigan Facilitator
Phone: 866-404-7539

www.amyloidosissupport.com

Dayton

Miami Valley Multiple Myeloma Support Group

Elena Mikalauskas
Phone: 937-208-6317
Email: emmikalauskas@mvh.org

Meets on the first Thursday of February, May, August, and November
6th floor of the main building at the Frederick C. Smith Conference Center
Room #2 of Miami Valley Hospital
6pm-7pm
Parking in the Apple Street parking garage.

Toledo

The Toledo Area Multiple Myeloma Support & Networking Group

Inge Lanzenberger
E-mail: inge1028@gmail.com

Meets 3rd Tuesday of each month
2:00 – 4:00 p.m.
Perrysburg Way Public Library
101 E. Indiana Avenue Meeting Rooms A & B
Perrysburg, OH 43551

Donate

Your contribution will make a difference. Donations to multiple myeloma research at OSUCCC-James enables our multiple myeloma specialists and cancer researchers to pursue promising new ideas, create new knowledge and ultimately develop new methods of cancer detection, diagnosis and treatment.

To make a donation, please make checks payable to “The Ohio State University” and write on the check:

Myeloma Research Fund #306144

Mail to:

James Development
Attn: Myeloma Research #306144
PO Box 183112
Columbus, Ohio 43218-3112

Contact Us

Craig C Hofmeister MD MPH
Principal Investigator, Ohio Myeloma Initiative (OMI)

voice: 614.293.3818
fax: 614.366.4539
email: admin@ohiomyeloma.org

William Falk
Resource Planning Analyst

voice: 614.293.3818
fax: 614.366.4539
William.Falk@osumc.edu