Your involvement is key to our progress towards the cure.
What we need from you:
Sign up and join our initiative. After giving us some basic information about you and your doctors, we will take care of the rest. We will contact your doctors and ask them to send us your medical records. We will enter your myeloma history into our registry and then you will be a true member of The Initiative.
What do patients get out of it:
Our website provides information about support groups, general myeloma diagnostic and treatment information, and clinical trials available in your area. Information specific to you is also available by phone or email. This is not a tool to second guess a patient's oncologist, but rather a place where a patient can get information about his/her disease, lab tests, and symptoms with options specific just for him/her. Stay tuned, because by early 2014 we hope to give you not only access to your complete diagnostic and treatment history, but also the ability to take snapshots of information about myeloma throughout the state.
What do researchers get out of it:
Through this IRB-approved database, we will provide access to a clinical database to allow hypothesis-generating questions to be asked and answered with an incredibly large database with unprecedented detail utilizing novel techniques to parse large quantities of data present in the general medical record into discrete searchable fields.
What do clinicians get out of it:
Private practice oncologists have fewer resources than they did ten years ago, more regulatory requirements, and a more expensive operation. We hope to ease the burden of private practitioners by providing information and background that doesn't fit in a crowded clinic schedule.
JamesCare for Life provides a comprehensive range of resources and services to support cancer patients, their families and caregivers.
At The James, our caring, trained professionals help patients recover and adjust to new ways of living. Dealing with a cancer diagnosis and the special circumstances surrounding cancer can be scary for patients, and living with cancer involves more than the physical aspects of dealing with the disease. At The James, we help patients journey out of fear and into hope.
Numerous support groups, services and classes are offered by the JamesCare for Life Program. Here are some resources for patients diagnosed with multiple myeloma and their family and friends:
Cincinnati Area Multiple Myeloma Support Group
Hugh and Marie Schaffer
Phone (home): 513-289-6842
Mary Anne Brennan
Phone (home): 513-871-3973
Meets on the 3rd Thursday of every month
6:30 – 8:00 p.m.
The Cancer Support Community Center (formerly The Wellness Community)
4918 Cooper Road
Blue Ash, OH 45242
Cleveland Clinic Myeloma Support Group Meetings
Meets quarterly, 1st Wednesday of the month
Taussig Cancer Institute
East 90th Ave and Euclid Ave
Leukemia and Lymphoma Society, Central Ohio Chapter
Patient Services Manager
International Myeloma Foundation Support Group
Phone (Home): 614-868-8506
Phone (Cell): 614-216-4852
Meets the 3rd Tuesday of the month
6:30 - 8:30 p.m.
The Cancer Support Community Central Ohio
1200 Old Henderson Road
Columbus, OH, 43220
Amyloidosis Support Group
Muriel Finkel, President
Sue Smith, Ohio/Michigan Facilitator
Miami Valley Multiple Myeloma Support Group
Meets on the first Thursday of February, May, August, and November
6th floor of the main building at the Frederick C. Smith Conference Center
Room #2 of Miami Valley Hospital
Parking in the Apple Street parking garage.
The Toledo Area Multiple Myeloma Support & Networking Group
Meets 3rd Tuesday of each month
2:00 – 4:00 p.m.
Perrysburg Way Public Library
101 E. Indiana Avenue Meeting Rooms A & B
Perrysburg, OH 43551
Your contribution will make a difference. Donations to multiple myeloma research at OSUCCC-James enables our multiple myeloma specialists and cancer researchers to pursue promising new ideas, create new knowledge and ultimately develop new methods of cancer detection, diagnosis and treatment.
To make a donation, please make checks payable to “The Ohio State University” and write on the check:
Myeloma Research Fund #306144
Attn: Myeloma Research #306144
PO Box 183112
Columbus, Ohio 43218-3112